Timeline From discovery to impact: Tracking the EURAS journey
EURAS is a patient-driven European research alliance charting new paths for rare neurodevelopmental RASopathies. This page follows our journey from the project’s launch and first deliverables to scientific breakthroughs, community milestones, and upcoming goals. Each achievement brings us one step closer to new therapies and better lives for families across Europe.
Project start
Press release: Advancing Treatments for Rare Neurodevelopmental RASopathies: Parents' Initiative for Affected Children Leads to New EU Research Project EURAS
EURAS Kick-off Meeting
Read more about it here.
Nomination of the EURAS Patient Board
Inaugural Meeting of the EURAS Patient Board
Deliverable 2.2 - Patient Board is formed.
Read more about it here.
Deliverable 8.1 - Project website with contents for publics, experts, and patients.
Read more about it here.
Launch of project website
Deliverable 2.4 - Domain-specific set of common data elements (DCDEs) publication.
Read more about it here.
Noonan Association Annual Day (Lille)
EURAS Consortium Meeting
4th EURAS Progress Meeting
Read more about it here.
5th EURAS Progress Meeting Online.
End of project